November 27, 2011 was supposed to be a day of celebration of a wonderful first year of marriage, instead it was a day to mark a new chapter of my testimony. My life has changed drastically since that afternoon in November when I walked in the door from the beach, and I paused for a moment and look at my phone in the hallway at home before going to the bathroom. Before I knew it I collapsed. I had no comprehension of collapsing to the floor other than mere shock, and sheer pain running through my body, I was in a lunge position on the floor and straight on my left knee cap. I immediately called for help “Ma-Ma-Matthew I think I broke my leg!!!” Matthew ran to help me, I rolled to my back still in shock by the pain. The plan of action was to call my parents, wait for their arrival, and let them help take me out to car and head to the hospital.
After arriving to CMC Northeast, I was admitted into the hospital due to weakness, tingling, and feelings of pins and needles in my legs and feet. Days later, after testing I was given the news I had neuropathy. Neuropathy is nerve and muscle damage. This damage was detected through a nerve conduction test and EMG, the cause for this damage was unknown. Words could not express what I felt other than the fact that I felt lost, and heart broken. The pain I felt from the neuropathy hurt, but my heart broke because I had to give up a part of my life, and put my life on hold due to the damage that had been done. A week later from the date I had originally fell, I collapsed once more. I collapsed in front of a nurse who strived to do her best for me. When I collapsed the second time, I felt scared to even walk again, a part of me was shutting down but no matter what I had an amazing neurologist pushing me to get up and walk and nurses encouraging me.
In addition to the problems with falling for the second time, I was having extreme migraines and had just came through a surgery for a nerve biopsy. My pain levels were out of control, on top of my pain levels I was being transferred by car to Stanly Regional for their rehab program in their physical therapy unit. Needless to say my first day of rehab was horrible and the second day until after I received a blood patch. My blood patch was a blessing because I saw my regular neurologist while I was in physical therapy, he realized I had a slow spinal leak 10 days after my spinal tap. My third day and there after my physical therapy was amazing and my migraines were gone! Praise the Lord!
Total I was in the hospital 18 days, meaning I got to come home a week before Christmas in the year of 2011. I was so thankful, the year 2011 I had an amazing Christmas! God provided everything that I needed, and most of all I got to spend Christmas with my church family, Harvest Church. Simply Amazing! December 29, 2011, I get word from my second nerve conduction and EMG that my nerve damage and muscle damage had shown itself and that the damage was greatly worse than the first conduction study that was performed.
2012 begins, shortly beginning the year I return to the hospital increasing pain and numbness in my right arm had occurred. The neurologist wanted to complete more testing geared toward auto immune diseases since in November I had a nutritional work-up and checked out healthy. During this time in the hospital, there were no new findings concerning my health, however my neurologists were working towards arranging an appointment at the Duke clinic.
While waiting for my appointment at Duke, I continually asked God about my health. I cried, I didn’t understand, and I wanted to know my purpose while I was waiting. I was losing my position at work, I didn’t know how to provide for my husband while he was in school full time and only working part-time. At this point our savings was going down the drain, and I had absolutely no control. It was then that I had to realize that God had to have the control not Paige. God kept telling me He wanted all of me. It was then that I started to realize that I needed to change my attitude and the way that I looked at everything around me. God blessed me in a way that I could never imagine.
During this journey, I have learned more about working with my individuals which for those of you who do not know me as well, I worked at GHA Autism Supports. I absolutely loved my job, and each of the individuals I served. As I have walked through this process, I have learned more about them in the way that I have always taught individuals how to live, but in this experience I have had someone teach me how to live. I had to learn how to walk again, how to pick things up off the floor, cook, clean, you name it I have to learn to take care of myself all over again.
In addition, I have been blessed because my God has been my provider. He has provided me with the strength to walk again, to learn things all over again, and modify my life in a new way. Also, He has provided a way for me to continue to lose weight; so far I have lost 113 pounds. He has also provided my husband and I with a wonderful support system through prayers from family and friends. We are so thankful for everyone in our lives, and we are believers in the power of prayer and healing.
Now, for the diagnoses from Duke, Duke was just as puzzled as CMC Northeast and Northeast Neurology. My diagnosis was lumbosacral neuropathy, which is neuropathy in my lower back and pelvic region where the nerve bundles are. In addition, I have neuropathy at the brachial plexus on the left side of my body or near the shoulder, and there are two abnormal muscles in my left arm. My prognosis is ranging from a year to 18 months, which has been determined by Duke. As for the cause, all the health care providers are stumped. They cannot determine a cause due to fact I am nutritionally healthy; I was not in an accident; no trauma occurred; and I was not and am not a diabetic. In all of this, I believe God is a healer, and He has already begun the healing. Duke has said the healing has begun. So, I am going to praise God through it all!
As I continue to walk through this chapter of my life, please pray for my husband and I. Pray that God will ultimately heal me, my pain will be reduced day to day, and that God will provide for my husband and I. Over the course of time, I will be going through testing and physical therapy to rebuilding my muscles. Thank you in advance for all your prayers, and thank you for reading about my journey.
Many Blessings!
-Paige Smith